Lea just continues to delight us! She was awake most of the day today, smiling when someone came into the room, sometimes responding to kindnesses by mouthing “Thank You,” other times responding with, “OK” when asked if she was okay, or “Not really,” when asked if she was in pain. She was in and out of the fog of withdrawal, and definitely has the “shakes” more when she is afraid or agitated in any other way, but rests quietly when she has the chance. She definitely does not like to be turned or moved, though!
She was focusing her eyes much better today, and actually had both of them pointed at the same object a lot of the time. She smiled at me when I entered the room a couple of times today, and puckered up real big for a kiss. She melts my heart, but I don’t kiss her, for fear of giving her some sort of complication. She has enough going on! But, once she gets well, look out!! I’ve been storing up all the kisses everyone has asked me to give her.
Dr. Mah came in this morning to check on her status, and stated that all the reports have indicated that she is once again getting better. Her nutrition levels are up, white count is holding, and she is taking off fluid very, very quickly all on her own. She is really beginning to look like herself again for the first time since she got so sick back in July. He ordered two units of red cells for her today to help her oxygenate, and ordered the respiratory department to try to wean her off the ventilator again.
This will be her third try at getting weaned off support, and we feel that she has a good chance of getting it done this time. She has less fluid on her body overall, and has a drain in her chest to keep fluid from building up around the lungs during the trial, and she appears to be getting past the infection she recently had. All indications are that she should be ready to go. We pray that she will be able to make it this time, and get back to breathing on her own.
She was started on the first stage at about nine this morning, which means that she was allowed to breathe at a rate that feels comfortable to her. The machine was set to force a minimum if she didn’t make that, but she took right off as she always does, and began working hard enough to work up a substantial sweat. I spent all morning putting a damp cloth on her brow and dabbing sweat from her face and shoulders.
As she gained strength in her lungs, and breathing became easier, the ventilator support was reduced. This was done several times during the day, as she gained each new plateau, and she was finally allowed to rest at six this evening when she could no longer make any progress. I’m certain she will sleep well tonight, and then she will be started on work mode again tomorrow morning.
Two longtime friends of Lea’s flew in from Indianapolis today to spend the weekend visiting with her and assisting with her care. She recognized them instantly when they entered the room, and gave them both a smile. Several times during the afternoon and evening she mouthed responses to them, and at other times was drifting off into delirium. The delirium tremors are decreasing every day, and should be completely gone by early next week, if her body is ready to get to the next level.
We are about two weeks behind our projected schedule of a month ago, when Dr. Mah said that we would go to step down if she didn’t have any set backs, which of course, she did. We think we are getting beyond that problem, and should be able to get back on track for getting out of ICU in a couple more weeks, depending on how her body reacts this time.
By the way, a mixed-joy thing happened today. I was chatting across the bed with Lea’s nurse, Janet, who was asking about how we ended up in the hospital so far from home. Naturally, my comments included the details on Pat and Joe, and I was telling her about Joe’s difficulty in getting his medicines regulated, that his heart is still in defibrillation, and the whole story of his illness.
Suddenly, the warning horns on Lea’s ventilator went off, filling the room with a racket designed to get immediate attention. The normal scan pattern when the alarm goes off is to look at the monitor to see what alarm is displayed and then visually check the hoses from the machine to the patient. We both looked immediately at Lea, who was lying between us; her face was beet red, and she was silently bawling, with crocodile size tears streaming down her cheeks!
I was very sorry to upset her, but it was over in a matter of minutes, and she is unlikely to remember any of it. We are, however, going to have to be careful what we say around her, because she is beginning to emerge from the fog, and can be easily upset. I later played a home movie with the granddaughters in it, and she seemed to enjoy it more than ever, although she was in and out of the fog.
It appears that her memory is working well enough to remember friends, to remember her affection for our friend Joe, and to be sad for his condition. Her smile is certainly working! And, there is a feeling of cheerfulness in the ICU as everyone watches with anticipation her latest battle for the next baby step toward recovery. She isn’t alone in her battle. She has a lot of support!
Dave and Dottie are here, as are her friends from Indianapolis, to help me provide around the clock support if needed through the weekend, and David will be remaining here in Hartford for a few weeks, if necessary, to ensure that we can always be available to her whenever she needs encouragement or support. Thank God for those who are able to help her directly right now, and for those who plan to help when we get home. She will need a lot of help during that stage of recovery, and we look forward to meeting the challenges as they are presented.
Thank you for the many kind responses to last night’s update. Lea and I have always had a blessed union. We made God a part of our courtship, wedding, and marriage, and everyday activities. I can’t remember a time when He wasn’t guiding our lives, and He has always blessed us beyond our desires, because we placed maximum value on love, honesty, respect and charity in our relationships with each other, and with others. The relationship I share with her is much more valuable to me today than anything else in this world. I owe her every chance for recovery I can give her.
Glory to God for Lea’s victories today! Praise God for the miraculous healing! I pray for more good days ahead, and to be able to report daily progress to you. Please keep Lea lifted up to God for His healing and protection, as we go into these next few nerve-wracking days.
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March 28, 2007 at 12:59 pm
Pray-ers
DAY SEVENTY-SIX
FROM: Lance
Sept 29 @ 12:11 AM
Just a quick note to let everyone know I talked to my father tonight, as I do most nights after he posts his update. Today, day 72, was both his hardest day and his best day thus far. From his post, I think most of us can understand how it could be so difficult. And, thank you so much, Ernest, for sharing your personal story with us. So wonderful!! If your father hadn’t questioned his doctor long ago, you would not be with us today. Praise God for you! You are a beautiful man.
I would just like to take a moment to bring focus to something beautiful that happened today that my father didn’t mention in his update. He told me that Mom was very alert today and, at one wonderful moment, focused as best she could on Dad and gave him the biggest, most beautiful smile. Then she puckered for a kiss!! This is my Mom! This is the extraordinary woman that we all love so much! Thank you, Lord, for surrounding us every day in your love and guiding us through these difficult times. And thank you, Pat, for painting a picture of my mother with chocolate on her face this Christmas. As hard is it will be for her, she’s just gonna have to sit there and let us bake all the cookies for once!
We love you, Mom! And God bless all of you who are joining us in this mission to better understand God’s Will and to come together as a family, God’s family. Thank you all so much!
FROM: Carol
TO: Marjorie
Sept 29 @ 12:22 AM
Aunt Margie, I hurt so much for Larry and all he is going through. I am in awe of his strength and I am jealous of the love affair he and Lea have had for all these years. don’t get me wrong scott and I have had a good life together . . . just not romantic. You know the grass is always greener. I assumed that that letter came from one of Lea’s brothers and I can sympathise with them…they are here she is there and they feel helpless so “let’s just get this whole thing over with” attitude comes pouring out. Poor Larry is fighting for the love of his life and now has more piled up on top of it.
FROM: Cheryl
Sept 29 @ 6:51 AM
Wow! Thank you for sending along the question a family member had about God’s will and then the following email about the baby. Wow. That really cleared up a lot of questions I had regarding God’s will and advanced directives. Larry, you are right, all that you guys are going through touches all of us out here. It continues to amaze me. Keep the faith! God’s Peace
FROM: Barb S
Sept 29 @ 7:33 AM
I feel it necessary to apologize to you Larry. This is a time that we as family should be pulling together to give all our support and strength to you and Lea. I feel in my heart that Lea would be so proud of the way you have handled things and how strong your faith has become. Someday soon, with God’s help, she will be walking beside you again and helping you to get through to those who had so little faith.
God will have the final say. Until then, we have no right to try and make his decision for him. Thank God you have followed your heart and your faith! We still have Lea and she is getting stronger day by day, baby steps at a time but, still taking those steps. We love you all as does God!
REPLY FROM: Jean
Sept 29 @ 3:44 PM
Barb- Thank you so much for being thoughtful enough to send an encouragement to Larry. I KNOW without a doubt, that that is what Lea would have wanted you to do.
FROM: Karen
Sept 29 @ 9:38 AM
Good morning, Larry, Your letter of 9-28, from a family member, stated “….but God made his choice to take Lea back on July 16th”. Nothing could be further from the truth! IF God had made his choice on that date, you would have buried Lea and been back in Atlanta to take care of your and Lea’s affairs. Each and everyone of us like to think we have at least some control over our lives, but in the matter of life and death? God is the only one who controls such things. To me it’s so simple – God is not through with Lea yet. What his plans are, we may never know, but you did NOT decide things that night,,,,God did, and he is not yet ready to receive Lea and may not for years to come.
I must tell you now, , Lea is so very lucky to have someone such as yourself that loves her so much. I can’t imagine how weary and tired you are at this point and my heart goes out to you for mustering up strength each and every day. Know this; you have the utmost respect from Gary and I for what you are handling with such grace. I wonder, also, if the family member who wrote that letter isn’t just a little tired and frustrated himself. It must be very hard to endure all this with someone you love. You want them better and to be able to talk to them again and have things as they were once again.
I hope his faith sustains him and I pray that he will see that you are doing the very best you can under such adverse conditions. I always suspected that, although Lea was thin and fragile that underneath all that she was a “Steel Magnolia”,,, now I’m sure of it. Know that we love you both and are praying for a speedy recovery for Lea. God Bless.
FROM: Brian
Sept 29 @ 9:54 AM
Mr. Vaughn, I would still like to consider myself a young man, but realistically have to admit that I am middle aged. No matter, as I read your emails, I hope that I can become the man that you seem to be. You have taught, and continue to teach me so many things throughout your updates. I am truly amazed. I know that in this point of my life, I would not handle things the way that you have, but you have given me a goal to strive for. Of course, our ultimate goal is our great example in our Lord Jesus Christ, but sometimes seeing parts of him in someone else is easier to relate to. I wish the best for you and Lea, who also has touched my life, and continue to pray for you all.
FROM: Robyn
Sept 29 @ 11:48 AM
Gosh Larry, after reading the latest update forwarded to me- i’m sitting here dumbfounded that you were seemingly chastised by someone who loves you and Lea. the thought that you might be doing something out of God’s will regarding Lea and her care has never even entered my mind. I sit here at my desk every morning and read your updates with tears in my eyes…sometimes streaming down my face…because of your faith, your love for her and the Lord, and the awesome, awesome privilege to see the hand of God at work in so many people’s lives because of what your family is going through. As always, you and Lea are in my prayers…love and God bless.
FROM: Laura
Sept 29 @ 12:32 PM
Larry, I have heard of how hurt you were by another individual’s letter. Everyone is titled to one’s own opinion, however there are some thoughts that should be kept to ourselves. All persons may have their own opinions, but they are just that. They are not relevant in anyway to try to pursue others into feeling like we do.
Larry if you feel right about your decisions then go with it. I have never met a more loving person than you. I have no idea of the pain and hurt you may be going through. I do believe that we all have felt some sort of grief. We all cope in our own ways and for another to pass judgment or tell you what you’re doing is wrong just is not right. If I had to describe your situation I would evaluate it as this years best love story, and you have won the golden globe. For a husband to be as committed as you is phenomenal.
I love the way you reminisce and look back through life. For it is the life we have lived that makes us who we are. Your’s and Aunt Leas life has touched so many. You will never truly know how many lives have been touched or changed from the love story of you and Aunt Lea. Larry you are one of the most beautiful persons I have ever met and your love and devotion just astonishes me. I give you my blessing and send my love and prayers. God Bless!
FROM: Laura & Cory
Sept 29 @ 3:19 PM
For Aunt Lea and Uncle Larry only! Laura and Cory has created a special posty, just for you,
FROM: Wes
Sept 29 @ 9:19 PM
Larry , I work for Lincare — which is a home oxygen & respiratory company. If you need any info about this company, if needed when Lea goes home , please feel free to ask for this company. They are nation wide and can be utilized from almost anywhere. Please ask if the nurses have any knowledge of this company. Thanks for the emails to keep me informed, please send them directly from you if possible. Just keep the faith!! God does have a plan for the two of you!!!!
Regards,
Wes
FROM: Bob & Barb
Sept 29 @ 9:46 PM
Dearest Larry, Praise God! I am so excited after reading your update tonight! Of course, all of you are still in my prayers. I would like to say that Bob and I say AMEN to what Barb wrote to you regarding the words of the “Anguished family members”. I don’t think anyone could have said it better! I believe God gave her those thoughts and words. I wish you, Lea, Dottie, Dave, and the other friends that are with you, a good night as you care for Lea. May you keep feeling God’s presence. Thanks again for your updates. God is in control!!
FROM: Kathy
Sept 29 @ 10:00 PM
Larry, I just wanted to write and tell you that I stand by you 100% in everything you are doing. I know that if things were turned that Lea would be doing everything that you are. No one is keeping Lea here. The doctors, nor you. If God wanted her, no matter what anyone does he would take her. I’m so proud of the way you are handling this and what you must be going through. I sure wish I could be there with you and Lea through all of this. I love you and Lea so much and you both mean the world to me. Lea is a wonderful sister, the best anyone could have. You and Lea are living God’s will. The love you share for one another only brings our family closer to you and to God. Through God all things are possible! Remember God says ” I can do all things through Christ who strengthens me.” Much love and prayer.